HINCHINBROOK Shire Council is supporting World Moyamoya Day on Friday 6 May by colouring the Rotary Park fountain blue.
Council was approached after local, Liz Sheahan was diagnosed with the rare disease. Mrs Sheahan was diagnosed after suffering a number of transient ischaemic attacks (TIA) and many visits to the hospital.
Mrs Sheahan was diagnosed in January 2022, has had one surgery and will be lining up for another in August. Those who know Liz know that she has taken it in her stride and putting up a good fight.
Moyamoya Disease is a progressive condition of the arteries in the brain. People with Moyamoya have narrowing blood vessels that leads to blockages and can eventually cause TIA, stroke, seizures and death.
Moyamoya Australia was established in 2019 by Nicola Baker in Ravenshoe, the mother of Jed, who had his first stroke at 11 months old.
When Jed, who is now 18, was first diagnosed there was very little information or support for anyone suffering from Moyamoya Disease.
Moyamoya Australia was established to raise awareness of this rare disease, and to give support to those who are living with Moyamoya Disease and their families.
Ms Baker was named as Fundraiser of the Year at the 2022 Stroke Foundation Awards.
Ms Baker took part in Stroke Foundation’s physical activity campaign Stride4Stroke for the eighth year in a row last year, creating a team which raised almost $5,000.
The Stroke Awards recognise the incredible individuals in the community who strive to make the future brighter for people impacted by stroke. This includes the stroke survivors, carers, volunteers, fundraisers, health professionals and researchers who are relentless in their mission to enhance recovery and make a real difference.
Moyamoya Australia are holding the Aussie Locums Blue Tie Gala Ball in Cairns on 7 May 2022, we have a number of parties participating in ‘Blue for Moyamoya Day’ on Friday 6 May, and we even have a local councils lighting up in blue to mark the occasion.
At the ‘Blue Tie Ball’ in 2021, we were able to announce a gift of $10,000 to Macquarie University Neurosciences for their research into Moyamoya Disease, and this year we are very excited to hear from Professor Marcus Stoodley, head of Macquarie Neurosciences, to hear what they have achieved.
Since its inception, Moyamoya Australia has held a number of other events to raise the profile of this disease including the Smokey Blue Rally, and the Great Blue Pigeon Race. Anyone can get involved in any of our events, even from the comfort of their lounge chairs by going to the www.moyamoyaaustralia.org.au.
So, on Friday wear blue, google Moyamoya and get a conversation started.